Kamron's Story

I first got sick when I was 4 years old with a disease known as Focal Segmental Glomerial Sclerosis. It attacked both of my kidney's so quick that many steroid treatments and many many hospital stays were not working in making me better. I was living in Virginia at the time, and then I moved to South Dakota and was hospitalized and put on dialysis to help me feel better. My mom's boss at work came forth as a guardian angel to us for she donated me her kidney. I felt so much better and was able to play in sports and be a normal kid. It has been 8 years since that day (Dec. 15, 1999) and now my transplanted kidney has given up the fight of keeping me well. I have had to quit football and wrestling because I am too small and too weak to play. I am on peritoneal dialysis at home. I have to hook up to a machine every night for 9 hours to help rid my body of the toxins that my kidney would normally have done. Things have not been going too well lately. I have had many hospitalizations for seizures and now I have high Phosphorus levels in my body because my kidneys don't rid it from my body and the vessels in my body and the lining in my brain have started to calcify. I have very high blood pressure and extreme headaches all the time. I take 22 different medications every day. I also have to go for lab work every week and to doctor appts every week. I am on 2 transplant lists (In Omaha, and in Sioux Falls) so I hope this will help me get a kidney. My blood type is rare B+ so this may cause me to be on longer, but I am hopeful that I will have one before baseball season. All of our Family and Friends please keep us in your prayers!!!Anyone interested in testing to see if you are a potential match you can contact:
Jolene Halsne
Sanford Transplant Coordinator
1-800-949-0670
www.halsnej@sanfordhealth.org

Tuesday, May 5, 2009

My Home Away From Home UGH!!

Well, I'm back in the hospital again!! I had been having trouble keeping food down for quite some time, as most of you know. There was good days and REALLY bad days. On April 24th I had not been able to keep anything down for 3 days straight. After being admitted to the hospital they found out I had Peritonitis again. Ths time was a nastier bug then before, and they also found
out I had Pancreatitis and Gall Bladder problems. Can anything else in my body give out?? I have had to go on tube feedings for awhile to give my body a rest. The dialysis is hard on my body right now, and I don't have the strength to eat and digest food. My pancreas has to rest. This SUCKS!! It now has been almost 2 weeks since I have eaten. I am a irritable individual just ask my mom and the nurses (HaHa). This is going to be a long and tough road, for as long
as I am in the hospital with these issues I am not able to get a transplant if one should become available. Please Pray for me, I need all I can get.

1 comment:

Dena Van Lith said...

We pray every night that a kidney comes your way. I know that God has one for you, just that it is taking longer than we would like it to. Hang in there! It was good to see you again, even if it was in a hospital! Listen to your mom and the docs, they really do know what they are talking about. You can give them hell when you get better. :)
Dena