Kamron's Story

I first got sick when I was 4 years old with a disease known as Focal Segmental Glomerial Sclerosis. It attacked both of my kidney's so quick that many steroid treatments and many many hospital stays were not working in making me better. I was living in Virginia at the time, and then I moved to South Dakota and was hospitalized and put on dialysis to help me feel better. My mom's boss at work came forth as a guardian angel to us for she donated me her kidney. I felt so much better and was able to play in sports and be a normal kid. It has been 8 years since that day (Dec. 15, 1999) and now my transplanted kidney has given up the fight of keeping me well. I have had to quit football and wrestling because I am too small and too weak to play. I am on peritoneal dialysis at home. I have to hook up to a machine every night for 9 hours to help rid my body of the toxins that my kidney would normally have done. Things have not been going too well lately. I have had many hospitalizations for seizures and now I have high Phosphorus levels in my body because my kidneys don't rid it from my body and the vessels in my body and the lining in my brain have started to calcify. I have very high blood pressure and extreme headaches all the time. I take 22 different medications every day. I also have to go for lab work every week and to doctor appts every week. I am on 2 transplant lists (In Omaha, and in Sioux Falls) so I hope this will help me get a kidney. My blood type is rare B+ so this may cause me to be on longer, but I am hopeful that I will have one before baseball season. All of our Family and Friends please keep us in your prayers!!!Anyone interested in testing to see if you are a potential match you can contact:
Jolene Halsne
Sanford Transplant Coordinator
1-800-949-0670
www.halsnej@sanfordhealth.org

Tuesday, February 3, 2009

Our 2nd Call


On Sunday February 1, 2008 at 12:30pm I recieved a call for my
2nd chance at a possible kidney donor. Omaha called and told
us they had a possible donor, which was high risk due to some
of the history of the donor, but the transplant surgeon thought
I might be a good recipient. I decided to go for it.
On our way to Omaha though we recieved a call form the
transplant coordinator that the surgeon had decided to refuse
the organs due to the refusal of signing of some waiver's. So, I
didn't get all the way up there this time before we got turned
away, but it was just as frustrating. I am hoping that the 3rd
time is a charm.
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2 comments:

Anonymous said...

Hang in there Kamron, we pray (along with so many others) every night for the perfect donor to come along. God will watch over you, just hang in there for the RIGHT call to come in!!!

February 5, 2009 at 1:38 PM
Anonymous said...

Hi, im B+ and maybe potential donor for you Kamron, let your parent contact me at bmnb1@hotmail.com.
and i hope u the good health everyday

wish you good luck my little friend

February 10, 2009 at 4:01 AM

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