Kamron's Story

I first got sick when I was 4 years old with a disease known as Focal Segmental Glomerial Sclerosis. It attacked both of my kidney's so quick that many steroid treatments and many many hospital stays were not working in making me better. I was living in Virginia at the time, and then I moved to South Dakota and was hospitalized and put on dialysis to help me feel better. My mom's boss at work came forth as a guardian angel to us for she donated me her kidney. I felt so much better and was able to play in sports and be a normal kid. It has been 8 years since that day (Dec. 15, 1999) and now my transplanted kidney has given up the fight of keeping me well. I have had to quit football and wrestling because I am too small and too weak to play. I am on peritoneal dialysis at home. I have to hook up to a machine every night for 9 hours to help rid my body of the toxins that my kidney would normally have done. Things have not been going too well lately. I have had many hospitalizations for seizures and now I have high Phosphorus levels in my body because my kidneys don't rid it from my body and the vessels in my body and the lining in my brain have started to calcify. I have very high blood pressure and extreme headaches all the time. I take 22 different medications every day. I also have to go for lab work every week and to doctor appts every week. I am on 2 transplant lists (In Omaha, and in Sioux Falls) so I hope this will help me get a kidney. My blood type is rare B+ so this may cause me to be on longer, but I am hopeful that I will have one before baseball season. All of our Family and Friends please keep us in your prayers!!!Anyone interested in testing to see if you are a potential match you can contact:
Jolene Halsne
Sanford Transplant Coordinator
1-800-949-0670
www.halsnej@sanfordhealth.org

Thursday, January 15, 2009

A Long 2 Weeks!!



As some of you may know we have been back in the hospital this week again. Kamron had surgery on Jan. 2, 2009. He had to have a new dialysis tube put into his abdomen. It was suppose to be just overnight, but He ended up having to have a blood transfusion. Two days after returning home he began to vomit and this continued for 5 days and his blood pressure was extremely high and his electrolytes were so off he was not stable. We were admitted on Jan.11th and it is now Jan. 15th and we are still here. We have had to have almost 60 hours of dialysis these last few days to clean Kamrons body. We are hopeful we will get to go home today. His blood pressure is stable and he has not vomited and everythingis moving again. I seriously think we own at least a fourth of Sanford Hospital by now. I will have to talk with Mr. Sanford about that! HaHa.

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