Kamron's Story

I first got sick when I was 4 years old with a disease known as Focal Segmental Glomerial Sclerosis. It attacked both of my kidney's so quick that many steroid treatments and many many hospital stays were not working in making me better. I was living in Virginia at the time, and then I moved to South Dakota and was hospitalized and put on dialysis to help me feel better. My mom's boss at work came forth as a guardian angel to us for she donated me her kidney. I felt so much better and was able to play in sports and be a normal kid. It has been 8 years since that day (Dec. 15, 1999) and now my transplanted kidney has given up the fight of keeping me well. I have had to quit football and wrestling because I am too small and too weak to play. I am on peritoneal dialysis at home. I have to hook up to a machine every night for 9 hours to help rid my body of the toxins that my kidney would normally have done. Things have not been going too well lately. I have had many hospitalizations for seizures and now I have high Phosphorus levels in my body because my kidneys don't rid it from my body and the vessels in my body and the lining in my brain have started to calcify. I have very high blood pressure and extreme headaches all the time. I take 22 different medications every day. I also have to go for lab work every week and to doctor appts every week. I am on 2 transplant lists (In Omaha, and in Sioux Falls) so I hope this will help me get a kidney. My blood type is rare B+ so this may cause me to be on longer, but I am hopeful that I will have one before baseball season. All of our Family and Friends please keep us in your prayers!!!Anyone interested in testing to see if you are a potential match you can contact:
Jolene Halsne
Sanford Transplant Coordinator
1-800-949-0670
www.halsnej@sanfordhealth.org

Thursday, June 4, 2009

Catch of the day!


My mom and I went fishing at the river and I caught
6 fish and my mom only caught 2. HaHa. It was a
nice relaxing day and the weather was perfect.







Our Trip to Minneapolis

My mom, sister and I had took a trip to Minneapolis for
Memorial Day weekend. We had a lot of fun. My mom
and sister did a lot of shopping at the Mall of America.
I rode my first roller coaster. Our hotel had a indoor
waterpark. We went to the zoo, and Science Museum.
It was good to get away from the doctors and hospital.

















Tuesday, May 5, 2009

My Home Away From Home UGH!!

Well, I'm back in the hospital again!! I had been having trouble keeping food down for quite some time, as most of you know. There was good days and REALLY bad days. On April 24th I had not been able to keep anything down for 3 days straight. After being admitted to the hospital they found out I had Peritonitis again. Ths time was a nastier bug then before, and they also found
out I had Pancreatitis and Gall Bladder problems. Can anything else in my body give out?? I have had to go on tube feedings for awhile to give my body a rest. The dialysis is hard on my body right now, and I don't have the strength to eat and digest food. My pancreas has to rest. This SUCKS!! It now has been almost 2 weeks since I have eaten. I am a irritable individual just ask my mom and the nurses (HaHa). This is going to be a long and tough road, for as long
as I am in the hospital with these issues I am not able to get a transplant if one should become available. Please Pray for me, I need all I can get.

Friday, April 10, 2009

Kamron & The Harlem Globetrotters


While in the hospital (again!) couple weeks ago, I got to meet one of the
Harlem Globetrotters when he visited me in my room. He later arranged
for 2 tickets for my mom and I to go and see them at the Sioux Falls Area.
It was fun!

Thursday, April 9, 2009

Organ Donation Month

Sanford Medical Center chose to sponsor me and my story for
Organ Donation Month in order to help educate the public on
on the things that a person my age can be robbed of in life when
they have kidney failure. My kidney doctor, Dr. Burris was
with me in it too. We both did great!! below is the website if
you want to see the clip and read the story.

http://www.kdlt.com/someone-you-should-know.html

Friday, April 3, 2009

Smile!!


I got braces finally! I still look adorable, well that's what my mom thinks. lol.

Tuesday, March 3, 2009

Bye Bye Appendix!

Well, we did get home for 3 days, just long enough to go to Watertown
for the finals for State Chamionship Wrestling Tournament. On the way
home I got sick again and on Monday March 2, I was admitted into the
hospital and on March 3rd got my Appendix taken out. Do I look any different?


BEFORE AFTER

Friday, February 27, 2009

Regions & Peritonitis



On February 20, 2009 while I was at the Regional Wrestling Tournament in Hartford I was hit with a case of Peritonitis and it hit hard. This was the one infection we didn't want. The pain was unbearable. The Hartford ambulance was called and I was taken to Sanford. Thank god for Morphine! but boy are the hallucinations freaky. HaHa! I spent 5 days in the hospital til the antibiotics cleared the infection and the pain was under control. The Minnesota Timberwolves cheerleaders came to visit me and Coach Joslyn. They were hot!

I WANT TO THANK EVERYONE WHO HELPED ME
THE TOURNAMNET AND A SPECIAL THANKS TO
LORI PUDENTZ AND COACH JOSLYN FOR THE TIME
YOU SPENT WITH ME.


KAMRON

Tuesday, February 3, 2009

Our 2nd Call


On Sunday February 1, 2008 at 12:30pm I recieved a call for my
2nd chance at a possible kidney donor. Omaha called and told
us they had a possible donor, which was high risk due to some
of the history of the donor, but the transplant surgeon thought
I might be a good recipient. I decided to go for it.
On our way to Omaha though we recieved a call form the
transplant coordinator that the surgeon had decided to refuse
the organs due to the refusal of signing of some waiver's. So, I
didn't get all the way up there this time before we got turned
away, but it was just as frustrating. I am hoping that the 3rd
time is a charm.

Thursday, January 15, 2009

A Long 2 Weeks!!



As some of you may know we have been back in the hospital this week again. Kamron had surgery on Jan. 2, 2009. He had to have a new dialysis tube put into his abdomen. It was suppose to be just overnight, but He ended up having to have a blood transfusion. Two days after returning home he began to vomit and this continued for 5 days and his blood pressure was extremely high and his electrolytes were so off he was not stable. We were admitted on Jan.11th and it is now Jan. 15th and we are still here. We have had to have almost 60 hours of dialysis these last few days to clean Kamrons body. We are hopeful we will get to go home today. His blood pressure is stable and he has not vomited and everythingis moving again. I seriously think we own at least a fourth of Sanford Hospital by now. I will have to talk with Mr. Sanford about that! HaHa.