Kamron's Story

I first got sick when I was 4 years old with a disease known as Focal Segmental Glomerial Sclerosis. It attacked both of my kidney's so quick that many steroid treatments and many many hospital stays were not working in making me better. I was living in Virginia at the time, and then I moved to South Dakota and was hospitalized and put on dialysis to help me feel better. My mom's boss at work came forth as a guardian angel to us for she donated me her kidney. I felt so much better and was able to play in sports and be a normal kid. It has been 8 years since that day (Dec. 15, 1999) and now my transplanted kidney has given up the fight of keeping me well. I have had to quit football and wrestling because I am too small and too weak to play. I am on peritoneal dialysis at home. I have to hook up to a machine every night for 9 hours to help rid my body of the toxins that my kidney would normally have done. Things have not been going too well lately. I have had many hospitalizations for seizures and now I have high Phosphorus levels in my body because my kidneys don't rid it from my body and the vessels in my body and the lining in my brain have started to calcify. I have very high blood pressure and extreme headaches all the time. I take 22 different medications every day. I also have to go for lab work every week and to doctor appts every week. I am on 2 transplant lists (In Omaha, and in Sioux Falls) so I hope this will help me get a kidney. My blood type is rare B+ so this may cause me to be on longer, but I am hopeful that I will have one before baseball season. All of our Family and Friends please keep us in your prayers!!!Anyone interested in testing to see if you are a potential match you can contact:
Jolene Halsne
Sanford Transplant Coordinator
1-800-949-0670
www.halsnej@sanfordhealth.org

Saturday, December 20, 2008

Ashley & Dallas










Ashley (Kamron's sister) and our dog Dallas are loving theChristmas Season and the snow!!

Wednesday, December 17, 2008

Maybe Next Time

Unfortunately after our call and trip to Omaha at 10:30am
we were informed that after blood samples were taken,
Kamron and the donor had some B cell incompatabilities.
We were told this can happen and we will never know if we
are a full match till right before it happens. The good thing
to know is that we are at the point in the list where we are
getting calls for possible donors, so keep us in your prayers
and maybe next time will be it. I think this is God's way of
letting us know this was not the one he picked for Kamron.

Terri

"The Call"

Dear Family and Friends,
Well, it finally happened we got the call! at 12:30 am we recieved
a call from Omaha to come for a possible transplant. The only information
we had was it is a young female donor. It is now 9:15 am and our nurses
are getting things ready in case it happens. (IV's and labs etc.) I will keep
everyone posted so stay tuned and please pray for Kamron there are
some risks with this donor, but we are going to hope for the best. I left
the decision up to Kamron and he wanted to go for it. So here we are!

Love You All!!
Terri & Kamron

Thursday, November 27, 2008

Our New Addition to Our Family


We recently have gotten a new
puppy. His name is "Dallas"
I'm sure most of you do no find
this surprising.
He is a Border Collie and has a lot of energy, and is extremely cute.








Wednesday, November 26, 2008

Make-A-Wish (USF vs. Concordia) Football Game



In October Kamron was asked by Make-A-Wish to be a special guest at the
USF vs. Concordia football game. He brought 2 buddies (Nick V. & Nick W.)
they rode out with the cheerleaders in a convertable to center field and
Kamron accepted a signed helmet by USF and assisted with the coin toss
to start the game.




Make-A-Wish (USF vs. Augustana) Basketball Game

On November 19, 2008 Kamron was a special guest at the
USF vs. Augustana Men's and Women's basketball game sponsored by Make-A-Wish. He accepted a check for
Make-A-Wish of over 5,000. The proceeds from the game
went to Make-A-Wish. He got a lot of fun stuff and got to bring 2 of his good buddies. (Jake & Tom).


Our Trip to Meet The Cowboys




In August 2008, I was granted my wish from Make-A-Wish to meet the Dallas Cowboys. My sister Ashley, my mom and(papa Bruce), and I were flown to Dallas for 3 days and met the Cowboys and went to a pre-season game at Texas Stadium against the Texans. It was the most unbeliveable trip.. We had a great time. For pictures of our trip go to the following links:
and
Terri

Tuesday, November 25, 2008

About Me (Kamron)

I first got sick when I was 4 years old with a disease known as Focal Segmental Glomerial Sclerosis. It attacked both of my kidney's so quick that many steroid treatments and many many hospital stays were not working in making me better. I was living in Virginia at the time, and then I moved to South Dakota and was hospitalized and put on dialysis to help me feel better. My mom's boss at work came forth as was a guardian angel to us for she donated me her kidney. I felt so much better and was able to play in sports and be a normal kid. It has been 8 years since that day (Dec. 15, 1999) and now my transplanted kidney has given up the fight of keeping me well. I have had to quit football and wrestling because I am too small and to weak to play. I am on peritoneal dialysis at home. I have to hook up to a machine every night for 9 hours to help rid my body of the toxins that my kidney would normally have done. Things have not been going too well lately. I have had many hospitalizations for seizures and now I have high Phosphorus levels in my body because my kidneys don't rid it from my body and m\the vessels in my body and the lining inmy brain has started to calcify. I have very high blood pressure and extreme headaches all the time. I take 22 different medications every day. I am on 2 transplant lists (In Omaha, and in Sioux Falls) so I hope this will help me get a kidney. My blood type is rare B+ so this may cause me to be on longer, but I am hopeful that I will have one before baseball season. All of our Family and Friends please keep us in your prayers!!!
Anyone interested in testing to see if you are a potential match you can contact
Jolene Halsne
Sanford Transplant Coordinator
1-800-949-0670
halsnej@sanfordhealth.org

Kamron's Journey

Hi Everyone! This is something we should have done a long time ago, but I'm technically challenged. I thought this would be a good way to keep everyone updated on Kamron's journey during his transplant struggles and hopefully to one day his joy of actually having a successful transplant for the 2nd time.